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What is Tourettic OCD?

12/2/2019

What is Tourettic OCD?

Have you heard of Tourettic OCD? Man, it's a tough one to describe. ? It can follow the classic cycle of OCD but it's different. Those who suffer with it often get stuck for minutes to hours completing a task or compulsion that is possibly tic like. Not because of an intrusive thought or even a perceived threat, but because of a premonitory urge.

Let's go through what "Tourettic OCD" looks like and how to do the treatment!

??Bloopers at the end! ??

Treatment For Tourettic OCD

Do I have Tourettic OCD?

16 Comments

Anna

4/14/2020 08:52:33 pm

Thank you for this excellent video. It explains the urges very well. I think that for people who don't have them, it may also help to understand what it's like by comparing it to a huge itch - when you feel that you just need to scratch. You may say to yourself that you won't scratch, but you will keep thinking about it, and it won't go away till you do. It's not the same but as intense - you can feel this intense urge in your fingers or wherever it is in your body, and it won't stop till you fulfil this urge. I also think that nail biting, skin picking, hair twisting, etc, may be part of it, too - it's all got to do with touch. I think your ideas of delaying and/or substituting are great. Thanks again! :)

Mayur Gupta

4/18/2022 02:50:22 am

Any solution?

Breonna Walker

6/13/2020 03:35:02 am

Thank you for explaining this. I literally just heard about this type of tics tonight. I have not been officially diagnosed but have had what I thought were transient motor tics my whole life. Being that I have learned to control them, but still have the urge, I think I am more along the lines of this diagnosis! I do have some funny hypersensitivities too. I used to throw fits about bunchy socks and likewise if the sheets arent a certain way. Some textures with foods also bother me. So hopefully I can get it sorted out this year!

Ida

6/18/2020 03:01:33 pm

Wow, I did not know my thing had a name of its own, I've just always said "some weird OCD thing and tics". Nor have I ever heard anyone else describe it like this. Thank you! Really liked this video.

Elin Renate

7/1/2020 09:31:56 pm

There are tears in my eyes. My OCD has presented since the age of seven, but I was not diagnosed for many, many years. I am now in my twenties and JUST now feel seen and understood. I thought all of this was "Just Right" OCD, but not everything was covered. I had pieces left that I couldn't see room for. This fits. Thank you for explaining it the way you did. I am so relieved.

Stacy

8/17/2020 09:33:45 pm

I found out about Tourettic OCD a few years ago, but it was only one article. I've been waiting ages for something else to turn up online! No one knows I have it, even though I've had it since I was about six and I'm 33 now. At its worst I felt like I couldn't do anything. Literally from the moment I woke up, every action had to be perfect/repeated And it was exhausting. I'd cry myself to sleep it was so frustrating. I don't know if some of them eased off, because they can chance, or if I just got used to it.
Anyway thanks for the video. It's so nice to know it isn't just me.

Missy

9/29/2020 03:32:31 am

I’ve had it since I was 6 and no ones knows except my family and I’m now 30! I was diagnosed with Tourette’s but as I’ve aged it’s definately TOCD. It’s exhausting but even more so that no one knows and I’m constantly “masking” it. Now I’ve developed trichotillomania and that one I can’t hide. Literally it’s written all over my face haha. Since my eyebrows are half gone. But it’s also a relief in a way cause I have to talk about it since people are like uhmmm where are your eyebrows haha. Anyways ocd is way more difficult to explain cause people can’t “see it” to believe it.

Blaine

11/16/2020 07:23:06 pm

Hey Missy. I also have trichotillomania. People have always acted strange around me when I get these impulses, trichotillomania or not trichotillomania. Great to know I’m not alone! 😊

Blaine

11/16/2020 07:21:06 pm

This has happened to me my entire life. I thought it was normal but I when it comes up in conversations, people would tell me it’s never really happened to them. I was confused because it was just what I’ve always had. I never told anyone about it because it was just not something I thought I had to do. Once I learned about Tourettic OCD, it all made sense. Although I don’t have ADHD, it affects me with almost everything I do. It helped me to learn I was not alone on this. I get these impulses like he said and sometimes they’re too much. Like I said, it helps knowing I have other people who know what I’ve been through by personal experiences. Thank you for sharing this video. It’s helped me learn more about me and my mental health.

Max

1/5/2021 10:38:04 pm

Could this include eye movements and complex phrases someone automatically repeats to themselves (usually before I even realize I’m doing it) I do this but I’m having trouble telling of its TOCD or just right OCD. Or both maybe?

Rose

1/6/2021 02:54:57 am

I'm also curious because I make lots of eye movement patterns. Always drawing squares and cubes, then blinking while looking at certain things (like the centers of freeway signs)

Logan

1/22/2021 08:34:02 pm

Damn for so long I always just thought I had OCD but without the intrusive thoughts. Or I thought I had tourets. But that wasn't quite right. This video explained my experiences perfectly and now I finally know what it is. Some of my tics (compulsions idk what to call them) are blinking hard and over and over. This gives me headaches and I have to do it over and over and over until the urge goes away. Another one is banging my ankles together. This caused me to have bruised ankles or scratched ankles from the velcrow shoes I used to have when I was little. Another one is sort of like clenching my muscles?? Idk how to explain it but I always have that urge in my legs, arms, fingers and more. Another one is scratching the palms of my hands or the cuticles on my fingernails. Or another one is seeing a crack on the sidewalk and I get the urge to go and step on it in the middle of both feet over and over. There are SO many and I never knew what was wrong with me. This video rly made me feel like I'm not the only one and I'm not alone. Although, no one talks about TOCD and no one's rly ever heard of it.

Mayur Gupta

4/18/2022 02:50:54 am

Any solution

Fran

7/13/2021 03:41:14 pm

Brilliant video but what do I do when my daughter has a diagnosis of PANS/PANDAS. I believe she has Tourettic OCD but this is due to auto immune issues which affects the basal ganglia in the brain which cause the urges.
Her Tourettic OCD presents as opening her mouth so wide until her jaw hurts and jumping so many times until she feels a sense of satisfaction.

11/17/2021 05:20:07 pm

I have Tourettic OCD. Haven’t found anything that helps... I manage to have good days but it’s constantly present

Eric Smith

1/16/2023 03:56:32 pm

I've been following TOCD since I wondered if I could have both OCD and Tourett's. I am officially diagnosed with OCD, but have tics described exactly as you mention. I just need to do it to relieve a somatic sensation. Or respond verbally in some way (Always if I, and sometimes another, fake laugh three times like hahaha, I must follow up with singing Green Giant.) Trying cbt hasn't helped because of what you describe. Inadvertently, I had that other training growing up. So what if you're uncomfortable, suck it up and quit whining. I did learn how to "deal" with it....so it isn't exactly disabling very often. Just having knowledge and an understanding, of what I experience counts for a lot. I can talk myself through stuff sometimes.

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